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Reply to "Upset - maybe misdiagnosed and biologics concerns"

Thank you, Jja. I’m told some granulation showed above the pouch last year. She now sees more inflammation and ulcers in and above the pouch. She says it’s not fecal backwash. Perhaps the addition of some granulation and now ulcers that’s suggestive of crohns is why she’s saying it’s not pouchitis. She told me antibiotics might make me feel better but won’t heal the ulcers. 

Last year she sent me for a small Bowel series and no additional ulceration was found higher up. She’s sending me for the same this year and says she suspects there would be more than what she can view with the endoscopy. Last year I turned my diet around for a few weeks before the small bowel series and the test came back clean. I have a few weeks before the small bowel series again, so I’ll work on my diet again. 

The doctor says at this point nothing I do or don’t do will matter. I know that’s not correct. What I don’t know is if I can heal the ulcers without medications. It seems I also need to look at some new diet things first that have been suggested to me. I’m not ruling out biologics but I’m hesitant knowing the doctor so quickly dismissed diet factors. 

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