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Reply to "Unforgiving"

For me, yeah it was worth it. I am 61 now and dealt with IBD since I was 15, with colectomy at age 40. Sure, my husband (who was my boyfriend when I was first diagnosed) and my family have been supportive. Like you, I've learned not to complain about my struggles any more than is necessary. I don't want my family to become deaf to me. 

The first year was rough and my function improved gradually. I actually only dimly remember what it was like to have a healthy colon, so for me I've focused less on my toilet trips, and more on how I feel. My kids were 8 and 10 when I had my surgery and they were great. A couple of months post op I was able to volunteer daily in their classroom, chaperone their field trips, serve on the board of the PTA, go camping, family trips, etc.. Sure, I've had complications that interrupted my routine, but we've managed.            

Both of my sons and my husband have all developed UC, so they all truly "get it." I would have preferred to be the lone UC patient in the family, but it is what it is.

Bottom line, I have no regrets, particularly considering my alternatives (ileostomy or bleed to death).

Jan                  

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