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Reply to "Underweight toddler with UC"

Our daughter was diagnosed at age six. At the time she was only 42 pounds, and I was aware of the ease at which she was going to lose weight. Two pounds, when you only weigh 42 is a relatively high %. To make it worse, she had inflammation throughout and had reflux vomiting - making it harder to keep weight on.

 

We tried to get her treated as soon as possible: Flagyl, prednisalone, sulfasalazine within two weeks. Two months later she was pretty asymptomatic although her numbers were not good until Feb. We gave her Pediasure (she didn't care much for it), pudding, anything to keep the calories coming. But with poor absorption and fast transit, food and diet didn't do much to help.

 

Honestly, if it were me, I would be working toward remission of symptoms - a round of prednisone, Flagyl, and / or biologics - until something is effective. I know putting so many meds into our little ones is so hard. We worry about short and long term effects. But getting the UC under control must be a high priority.

 

Diagnosed at six, surgery at seven, takedown at eight. We are so glad. She has grown a ton, us now twelve and is thriving. You would never know she ever had UC. Keep pushing for better.

 

Steve

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