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Reply to "UNC Chapel Hill Pouchitis"

Just curious how things worked out for you.  I go to UNC and have been for this.  My surgeon is there.  They tried me on different antibiotics that gave some relief periodically.  It never really went away and that was because it wasn't pouchitis at all.  I had inflammation in my small intestine as well and am now being treated for a "Crohns like" disease.   I was told this is incredibly rare (-10% of J-pouchers) but it does happen.  So far I am responding well to the steroid and am scheduled for my first infusion of Stelara on the 3rd of July.

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