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Reply to "TWISTED POUCH/ LIQUID DIET ADVICE"

Hi Lauren,

As the saying goes no news is good news!

I’ve completely recovered from this episode and will shed some light on what my CS and GI think is happening.

First off, the defecograpgy didn’t reveal much as I expected since I can’t “properly “bear down - as I have no control over my internal sphincter -...Now, two pouchoscopy 2 months apart since my hospitalization revealed a anastomotic pouch sinus, also known as sinus tract, right by the anus entrance. My GI doesn’t know yet how it was formed but could be the results of anastomotic leak - might have been there (without causing issues) for up to 28 years since I’ve always had a leak since the take down - at the seam where the pouch connects with the anus or else to the skin where the old stoma was - I had a skin abcess lanced there 2 years ago -...Not sure yet what the next step will be, but my GI at UCSF suggested surgery (pouch re-do???) or endoscopic surgery (sinusotomy ???). I’m a bit concern about a surgery because I feel so good now - as good as I ever been during the past 28 years post J-pouch - and sometimes doing nothing can mean less trouble down the road, but I’m listening to options.

Tony

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