Hello all! Posting here for the first time.
I had a presumed pouchitis flare about 5 weeks ago. Presumed, because it wasnt confirmed with a pouchoscopy. I had my normal symptoms such as urgency, night accidents etc. I quickly started a two week course of metronidazole and the pouch-specific symptoms faded away about after 5 days on the meds. At this point, I had however developed a number of other, more general symptoms such as heavy fatigue and most noticeably total loss of appetite. I wasnt too worried because I thought those were side-effects from the antibiotics and would pass after finishing the course.
That didnt happen though. Its now three weeks after finishing the antibiotics and my body is a total mess. I have zero appetite and any food makes me nauseous. I've lost 4 kg in couple of weeks. I'm extremely tired and have zero energy to do anything. Most recently I've also had weird, bloaty stomach pain which has ruined my sleep. This is weird, since I've never had actual stomach pains with either colitis or pouchitis.
Despite all this, pouch is functioning pretty normal-ish. Perhaps bit watery output lately, but no urgency or pain.
I just wonder what is going on? Is the pouchitis flare still active despite "unusual" (for me) symptoms? Could this be a sign of developing a Crohns disease?
My doctor thinks my symptoms are not due to pouchitis but agreed to schedule a pouchoscopy so hopefully that will give some answers. I'm pretty desperate at this point after feeling like s*it for weeks and seeing no progress.