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Reply to "To keep or to lose"

I am also not an ostomy expert and have not experienced valve problems.  Since your valve is currently not leaking, I would be inclined to delay surgery.  When it starts leaking again, you could try leaving a catheter hooked up to a leg bag 24/7.  That should result in less external skin irritation than conventional ileostomy appliances.  I do not know if there are any surgeons who could repair your valve without using more small intestine. A dietitian might be able to suggest foods that would enable you to gain some weight without making your leakage problem worse.

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