Summer, I am so sorry you're going through all of that. My heart just hurts for you. I had my takedown/creation of j-pouch on December 14th, so I am recovering from that now; also feeling pretty down/depressed just because I feel so limited in what I can do and am in some amount of discomfort all of the time. When I had my colon removed, I also had an ileus and an NG tube and that was hands down one of the most trying experiences of my life. I cannot imagine going through it more than once.
Please send me a message if you just want someone to correspond and commiserate with! The plus side for me is that I was in a really good hospital with a great surgeon and helpful nurses. Your hospital experience sounds awful and I wonder if it may be worth looking into being seen somewhere else...? I'm sure the thought of that sounds like a huge pain, but your quality of life is SO important and getting good care is crucial to that.
Is anything improving for you yet?