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Reply to "Time for surgery.."

Wild one, CT's discription is pretty accurate.  My son was diagnosed at age 6 with UC.  Have multiple rounds of steroids until age 14, had the steroids at least once a year for at least 5 years.  At age 14 he had a very serious flair, but that was his last major flair.  over the next number of years he decided he didn't need his meds because he felt fine.  At age 23 had a colonoscopy and they found that his entire large intestine was ulcerated, inflamed and found at least 3 precancerous polyps.  So out the entire intestine came out.  For him, it was very painful.  We had lots of set backs due to appliance.  it kept leaking, his skin got burned, we couldn't get it on correctly.  Once we figured it out, all was great.  But he had a lot of difficulty with pain.  In Sept of 2014, he had his takedown, and again he had a few complications.  Both surgeries were extremely difficult for him.  Both surgeries were done laprscopy.  It's usually the surgeons preference.  We had one surgeon that preferred to open him up and the one we used did it laprscoply.  

 

Bathroom trips, with the ostomy, not so bad. with the j-pouch, a lot.  He wasn't sleeping, up most of the night, slept during the day.  Lost just about 100 pounds.  Had lots of pain.  He always had a very high tolerance for pain. But with these surgeries, not so much.

 

recovery time, we were told no driving for 6 weeks.  so I'm assuming no work for that long.  I'm sure you can work from home.  But everyone is different. 

 

if you are having displasia and pre cancer polyps, don't wait too long.  Cancer is right around the corner and it is more difficult to treat when you have IBD.  We were told cancer my son would have full blown colon cancer within the year, most likely.  Can't really make predictions, but based on statistics.  So really, you don't have much of a choice here.  Every patient reacts differently.  We all have a Different experience and you. Ithat just sail through the surgery.  We were not that lucky.  But it is what it is.  Just stay positive!  Good luck to you!

 

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