Hello everybody! It's been many years since we have posted in this forum. Long story short- we are from Montana and my husband had initial surgeries here. Many complications including a fistula (that eroded part of his tailbone!), and an unskilled surgeon resulted in a complete J-pouch redo surgery in Salt Lake City. More small intestine had to be used for the new j-pouch. Fast forward 20 years and he is losing weight rapidly, not sleeping, on the toilet all the time and generally miserable. He went to a new doc today who performed a flex-syd and said "the pouch is shot. It's a hard deformed lump of fibrous tissue." And the connection to the small intestine is so tiny he couldn't even get his scope in there. He recommended an ileostomy. My husband is devastated. Please HELP! Do we need to get a second opinion? We are willing to travel but where do we go? The surgeon in SLC is no longer there. And he was pretty old at the time he had performed the redo! Have ileostomies improved in the last 20 years? Any advice is appreciated!
Original Post