This site absolutely spreads awareness. There is a k-pouch forum and information here about BCIR.quote:This is about spreading awareness for people that might not know what other options are out there, not what it the best surgery to have. Please stop making it out that way.
That may be the case but it is still contraindicated. Would you have statistics available that show that those with chronic pouchitis who revert to a continent ostomy are doing fine? That would help people make a more informed decision if those statistics are available.quote:There are people who switch to continents that have chronic pouchitis with J pouches and do fine. I know plenty.
I can't imagine anyone wanting to die rather than having an ostomy. I can understand a person preferring not to have one but chosing death over an ostomy is severe. I understand that you are very pro-BCIR but your anecdotal opinions aren't helpful and could be harmful to people who are on the fence about what type of surgery to have (or whether to have surgery at all). Ostomies are not at all bad. They really aren't. There may come a time when the problems you're having with your BCIR necessitates having it removed and your only option may be an Brooke ileostomy. You may find that you have no symptoms at all with an ileostomy. (You can't compare a leg bag with an ileostomy - they're very different.)
Regarding the comment about being offended - chromancer is correct - god isn't necessarily christian (there are many god/desses). If you were offended by that comment you could have PM'd him with you concerns.
kathy
