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Reply to "Thinking about ostomy"

Jared-
I might suggest you go first for a diverting ileostomy. The jpouch is left intact, just simply disconnected. It is NOT a major surgery. This should almost immediately get you out of your problems. At least for me it did. You may have to deal with high output standard loop ileo problems, but they are really nothing compared to what you are saying is going on with your jpouch. A lot of people can stay this way indefinitely - a disconeected jpouch with diverting ilestomry.

However, for some of us, that didn't work. I first had my jpouch disconnected after it was determined it had major functional issues that could only be resolved through a pouch redo. Unfortunately I developed bad diversion colitis which could not get under control. So after about 1.5 years and a lot of soul searching I had my jpouch excised and a permanent end ileostomy created about 3 months ago. That particular surgery is MAJOR MAJOR MAJOR. So your body has to be as healthy as possible and you want the best experienced surgeon you can find.

But you may not require that surgery. You may just be able to carry on with a diverted jpouch. The other advantage of the diverted jpouch is that you can always change your mind and try the jpouch again.. if you so desire!
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