Reply to "Thinking about ostomy"

MaximausMember

Jared,
I am in the same boat. I have an appt with a surgeon on Wednesday to discuss pouch removal and perm. ileo. It is a scary and emotional decision. It tooks weeks before I could think about it without crying. Now I just want freedom from this pouch that has never worked correctly. My doctors have mentioned pouch removal through the years, but I was never willing to listen. It was not until my last appt. that I really started to consider it. I cried the whole way home! But I have suffered for 10 years! I can not suffer for the next 10 years!
My GI said that he has never had a patient go to a perm ileo and regret it! In fact he said that all of them said they wished they had done it sooner. Only you will know when you have had enough. When that times comes, do research, speak to those that have a perm ileo, and know that you will be ok. I would be happy to share with you what I learn along the way.

6/22/129:21 AM

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