I can't take it anymore.
My four year anniversary of takedown was just a few days ago and I've had it. I have had pouchitis just about the whole time I've had the pouch. I was in the hospital last September and the inflammation was so bad they thought it was crohns even though all tests and biopsies show otherwise.
The antibiotics aren't doing much anymore. The steroids don't seem to help much. But I think my biggest problem is at night. Not only do I wake up a few times to use the bathroom every night, but i can't remember the last time I woke up without poop in my pants. I'm going through a few pairs of underwear nightly and I have to washy sheets often.
I'm a young single guy and I want to have a girlfriend, but who want to be with a guy that has uncontrollable bowel movements every night?
I have been thinking about disconnecting the pouch and just having an ileostomy. I think that would solve my problems, but I can't be sure. I haven't said anything to my doctor yet. I have an appointment in August. But even with all the problems I've been having this is still a hard decision. I've tried almost everything. I don't want to take antibiotics and steroids every day. They're not helping so I haven't been taking them. I tried a number of herbal things, probiotics, I even changed my diet to mostly plant based foods and I'm not eating a lot of processed foods.
What should I do? Should I just get the ostomy? I would really like some advice.
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