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Great idea. I sent a formal letter to all the surgeons on the american side at http://www.fascrs.org/ and NO ONE replied.

I think the challenge is huge. It will start with GI dr knowledge, ET nurses (for those like me that were raw from allergic reaction to adhesives, etc.) and the volume of need.

I do know that at our Take Steps walk, a top GI dr at University of Irvine recommended only a KP and for his patient to see Dr Worsey at Scripps or Cleveland Clinic. I got referred in 1980 from my GI dr. And, my current GI dr is familiar with KP and does my scopes.

I think the tactic may be to find those with ileostomies or failed jpouches in need to seek alternatives. If there is demand, surgeons may finally be aware and interested. It comes down to the requirement of committment on the surgeons end due to followup, etc.

Good luck, I'm all for this...it's an uphill battle.
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