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Reply to "Tailbone pain as the main symptom? What is this?"

Another update just for completion.

The GI doc is calling this thing a "fistula-like" lumen and they disagree that this is a pouch sinus. He isn't even fully committed to the idea that this is a fistula either. He tells me the lumen probably gets stool stuck in it. And that it is residual damage from inflammation which is now interfering with the evacuation process that once worked so He wants me to take laxatives and follow with a pelvic floor specialist. He also said there is fluid in the area that they want to sample with a needle to make sure it's not infected.

This whole thing is very weird because the internal medicine team and the GI team keep telling me slightly different things so this might all change tomorrow. I would like to get a second opinion from one of the j pouch gurus at Columbia or CC. I don't trust their diagnosis but I'm going to at least give it a try for a while.

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