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Reply to "Tailbone pain as the main symptom? What is this?"

@Sara Marie Thank you for your kind words. You're absolutely right and people are kinda awful with blaming the victim. It's quite sad.

I am really scared of what is coming next. I see the doctor's NP tomorrow because that was the earliest they could get me in. Doctor is too booked out. With the fatty liver thing, if it's medication caused, then I don't know how I will solve that seeing as how I need a bunch of heavy medications to get the pouch under control. Apparently I am on the short end of the stick....the main drugs that cause liver damage are antibiotics, corticosteroids, antidepressants, and antipsychotics. All drugs I take or have taken or might need to use. After spending 7 years on steroids during the UC hell, I cannot tolerate prednisone at all. Since Flagyl and Cipro aren't working, i fear this is the next line of defense. And then what will happen to me?

If there's a procedure for dealing with the stricture, that's good, except I'll have to go on anaesthesia then, which ... liver. And will it hold it off forever so that I know I can safely adopt a child and finally stop worrying about my own stupid health? Nope.

The weirdest thing is, I have none of the classic symptoms of pouchitis but they keep calling it pouchitis. No diarrhea, no high frequency, no cramping, no blood, no itchy butthole, etc.. Only pain. And TYLENOL takes the pain away? Weird. I have never used tylenol when I had UC. It's not recommended by anybody. I'm sure it's terrible for my liver. But the pain is unbearable. And I can't poop. If I go to this office visit tomorrow and they just tell me to go home and keep living this way, I'll scream. I'm pretty sure not being able to poop without like 4 consecutive enema is an emergency, right?

I can't even keep my emotions together right now. Our last visit with the social worker for the adoption is this wednesday. The timing is so bad. We're going to have to tell them that I'm sick. They might fail us. We've already told our family we're adopting. If we have to say we're not, so many people are going to be disappointed and they will all blame me. My husband's health is flawless. THey'll all know why we failed.

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