So this thing just got way worse.
My gastroenterologist admitted me from my appointment because I was super sick, in pain, and couldn't poop at all.
Long story short after an MRI and a flex-sig scope and an x ray no obstruction or stricture was found. I don't actually even have any pouchitis. My mucosa is actually significantly improved over my scope a year ago.
Yet...there are some weird anatomical features of my pouch they can't quite explain. For one it has a weird shape. They found some kind of extra lumen that formed behind my pouch near my tailbone. Like a second mini pouch that goes nowhere about an inch deep. There's a trivial amount of fluid on the outside of the pouch that the doctors can't all agree on whether it is clinically significant. Worst of all even since the massive colonic style irrigation they did to clean me out for the scope I STILL CANT POOP and I STILL have the stupid tailbone pain.
I'm still in the hospital and tomorrow may bring a barium enema and a needle aspiration of the fluid in question to culture it.
At this point it looks like my two potential treatment options are to spend a few years with a pelvic floor PT and laxatives and enemas....or....give up the pouch. I hate to even put that out into the universe and the doctors see it as a last resort but it would crush me to have to remove a pouch that has no IBD in it.
I read multiple threads on here about how people deal with constipation in the pouch and this seems standard.
Nevertheless I feel angry and depressed and hopeless.