The fun continues. @Scott F @PouchLogic and @RHolt Any thoughts of yours would be greatly helpful if you have any.
I finally went to the ED to get evaluated because I was sick of begging for an appointment in our understaffed medical system. The CT scan found a stricture and pouchitis. Pouchitis isn't responding to flagyl and so they added cipro but I still don't feel better yet. Pain is still there. I felt temporary relief after they gave me IV fluids and some non-steroidal pain reliever called toradol in my IV. But it's back 8 hours after discharge. So this really sucks.
Real serious questions...
1. Is "Stress" really the cause of this stuff? Why is this happening NOW of all times, when I'm trying to adopt a child and move on with my life? I've been fine for 11 years. Why now??? I cannot live in a bubble. I already quit my job to reduce stress last fall. Am I supposed to just sit in my house quietly all day with no friends, children, family relationships, or any of the commitments that make life worth living?
2. What are the signs of pouchitis that has the potential to become treatment refractory? I am tempted to just tell them to take the pouch and save me 10 more years of medication trials. This is what my UC was like -- nothing they threw at it worked, hence the surgery. I CANNOT emotionally tolerate another round of that life. I feel like my dreams of motherhood are just slipping through my fingers. I had a vision of a normal life that almost materialized but it isn't seeming to go that way now and I feel like my heart has been ripped out.