Hi there - I have a j-pouch with a recurring separation at the pouch-anal anastomosis. My surgeon wants to do a pouch redo, divert to ileostomy for a few months, and then close. But, he thinks I may have been misdiagnosed and that I might actually have Crohn’s. So, if this doesn’t work, he will want to give me a permanent ostomy. I am just really hoping there are some other surgeons out there - preferably in the Boston area - who are willing to think outside of the box. Know anyone?? I’m 24 yrs old, I’ve been sick for a few years, my dad passed away suddenly & I just want to enjoy my life again. I’ve had an awful time with the ostomy in the past. I admire those of us who have permanent ostomies - I guess I’m just not strong enough. I do have a second opinion scheduled with Dr. Remzi in NY, but going with him might not be covered by my insurance since it’s out of state. If you have any advice or recommendations please, please help yo girl out. This thing is a ticking time bomb since fluid is leaking out of the separation. I need to act fast. I appreciate your time reading my post. xoxo Katie
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