Reply to "Surely just let me die"

Hi lee,

thanks for providing some background info for us. I think it’s a good starting point.

I am not surprised that your surgeon has checked out. Beyond the initial first several months post surgery, my surgeon has no participation related to my ongoing care.

my GI has been with me for almost 6 years and coordinates all of my care related to IBD and my UC and now my jpouch.

have you had a pouchoscopy? If not, aligned yourself with a GI who is experienced in pouches. You need to know if you are dealing with mechanical and/or functional issues.

The bleeding is concerning to me, and I would want to know why. There are a number one of things that could be causing your problems, but you need to know if your pouch is mechanically sound and this can only be accomplished via a physical exam. And while they are in there they can also evaluate you for pouchititis and cuffititis.

8/28/2211:08 AM

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