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Reply to "Surely just let me die"

Hi Lee,

The intense burning when you poop makes me think you have a fissure in or near your anus. I just had a friend go through this. The cure was, believe it or not, an injection of botox in her anus (she was under anesthesia for the procedure). It was very helpful to her. I think what others have said to help with your other issues--the need to slow down your digestion and what might help, and most importantly, the need for you to find someone who will pay attention to you and really understand your medical issues---is fantastic advice.  I think what you can do now while working on finding the right practitioner for you is focus on slowing down digestion (there are lots of natural and medical ways to try), addressing your pain (tylenol or advil?); and curbing your diet way back (sounds like the BRAT diet may be the way to go for right now for more immediate relief).  Having been on this site for a while now, I know that we each have to find our way with managing the J-pouches. It helps to read what other people have done that has helped them.  Then you have to try them and see if they work for you.

I really hope you get some relief. As someone commented, the lack of sleeping alone really compounds the issue. Lack of sleep affects your entire outlook and really messes with your mind!

Try some of these things, while finding an expert who can really address your issues and let us know how you are!

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