@Lee-squire posted:Sorry I wasn't sure I was going to come back to this. Not a good day. Il try to give a basic rundown of what happened to now. 6+ years ago my son was born. The night we got him home I pooped until the sun came up. Wifey had high blood pressure so we were on a whole wheat diet. I had celiac. Some months later was diagnosed. But I had uc as well, but they couldn't find it for some months more. Then came arthritis. I got hammered relentlessly for 6 years until they took my colon out in a 3 stage. 2+ mo ths ago had the reversal. Haven't been good for years now and not sure I got any fight left in me. Still bleed when I poop, and it burns something fierce. On low fodmap since hospital and everything else you can try to my knowledge over the years. Just can't handle anything. Got a dietitian who's stumped. Surgeon won't talk to me. My g.i has seen me once in the past 2 years. What more can I tell you that's helpful?
Do you live in the U.S.?
Bleeding when you go to the bathroom doesn’t sound good, you should not have bleeding. Not being able to speak to your doctor is definitely not a good sign, you need to find the right doctor, someone that specializes in the jpouch. If you live in the US we can certainly help you find one.
A fodmap diet works when trying to figure out what you can handle, it doesn’t sound like it’s working for you. The doc always put me on the BRAT diet/ old school, until things settled down, Bananas, Rice, Applesauce & Tea. Rice is a good bulking agent, it seems like you need something to bulk your stool up. Quinoa also helps, gentle on the stomach, and provides protein & vitamins.
I would suggest some type baby rash ointment for your bottom, Im sure it’s very raw down there. You need to keep it on all the time for it to heal, not just when you go to the bathroom. I use Triple Paste, it’s a little expensive but works fantastic. Do not use Desitin it burns.
We are here to help you, it may take a while but it will get better.