Never sleeping makes a person feel insane for sure on top of feeling lousy, and never sleeping makes it harder to heal. That in itself sucks really hard, then all the pain on top of that. So awful. I have found recently that organic psyllium husk powder helps in slowing down the guts. It might give your guts a little time to rest, and also your mind. Also its very gentle and soothing. If you try it, please start with a small amount. Dieticians can only estimate what might be good for the body at any given point, but really, the expert is the person's own gut. The problem with that is we have to find out by experience. I recommend "Listen to Your Gut" by Jini Patel. It was recommended to me by someone on this site, and it is super informative and empowering. In the mean time, aloe juice or gel can help soothe the guts (again try a small amount). Ginger and Turmeric can be great for joint pain and general aches. And practically every J-poucher takes probiotics in some form. As with everything, start with a small amount and see if it works for you because your body and your gut flora will respond differently than mine, and it will respond differently from itself at different times. Once you get balanced out more, you will be able to handle more. It can get better. It's awful to feel sick all the time and to never even have a break through sleep. I have been there and I wanted to die, too.
Some people on this site have had a lot of luck with antibiotics to manage the pouch problems. Have you tried anything like that? I wouldn't be one to speak to that, but plenty of others can offer insight on what has worked for them, and you may be able to get your GP to write you a prescription if you have the name of something from those with that type of experience.