Hi Fredz
i was planning to give an update on my recovery but when i read your story i thought it's better to respond to you.
I fully understand the situation you are in now. it just sucks, but you gotta stay strong. your life will get better even with all the inconveniences. trust me we've all been there. I will tell you my story that you may gain some hope from
April 2018 I suddenly fell ill. a month later I had emergency surgery. turned out to be fulminant uc. I was never sick before, so you can imagine that my life was turned upside down. I thought of all the things I couldn't do anymore but you have to keep going. I thought if it wasn't for myself then for my kids and wife. I've had 3 operations of which the last was 18 months ago. currently i still have to learn what is best for my pouch. what kind of food, when to eat, medicines, how I can best empty my pouch. it's a process of finding out what works best for you. by that I mean how you can get the pouch under control. currently I go to the bathroom about 4-6. i am using 6 immodium. every month I feel better physically. there are always relapses that you have to go through. those were the moments where I sometimes got depressed because you think you have it under control and then boom ... not.
Now I finally dare to say that things are getting better and that I am also confident to pick up my old social life (after covid of course) playing football, drinking with my friends (even though I haven't been drinking alcohol for a long time
So Fredz it is tough both physically and mentally. but that doesn't mean it's impossible. You have read before that time is the best medicine. it really is. keep a (food) diary and find as much information as possible on this great site. it helped me a lot. You can do this.
greetings
Alex