Skip to main content

Reply to "Stopped Humira, it was a bad idea"

MK,
If all of these problems started after you started taking new medications I think it's safe assuming they are the cause! Maybe it is just one of them causing them. Your systems are horrible.

It took me 10 years of my feet slowly going bad before I finally found out I now have neuropathy. No one could tell me what was wrong with them during that time and I saw plenty of doctors and had many tests, including an MRI. It got thrown in my firomyalgia bucket and the rheumy said the problem was not caused by fibromyalgia. Not until they finally went numb and I finally landed at a neurologists with Migraines did my feet get diagnosed. No cause but he is "watching" them to see if he can figure out the cause before it spreads to my "hands". He prescribed a medication that has helped with some of the pain, at least. What I am trying to say - and your cousin story reminds me of this - we are not making this up! I use a cane many days and have a handicapped parking permit.

I also think these medications might have affected your thyroid. I have dealt with an underactive thyroid for 20 years and the last 3 years, since my surgeries started, I've had a difficult time because it has been uncontrollable. My GI at Mayo stresses that when my thyroid is underactive it affects my pouch function, as well as it makes my hair fall out, increases my fatigue and there are other problems. The thyroid controls our metabolism and affects every cell in our body. In July 2012 my local GI sent me to Mayo, after he couldn't get rid of my cuffitis, I had had c.diff too. My thyroid tested at .03 the normal range is .3 to 4.0 so I had an extremely low reading. My Internist had been testing me and had been adjusting my dose since take down 18 months before then. It is a continuing thing. My thyroid reading was fine at Mayo in July this year but 3 months later tested too low again. Sometimes it tests too high, over 4.0. I can usually tell now when my hair starts falling out! I use to have super thick hair that required thinning when I had it cut and it doesn't need thinning any more.

I suggest you get yours tested, before next Tuesday if you can. My local GI hadn't thought of testing mine so I'm guessing your GI hasn't tested your thyroid function.

I'm not saying this is the cause of all of your new side effects but I think maybe they did something that messed up your thyroid function or it just went out on it's own.

If you have not had your blood tested in a while it would be a good idea to have it tested for all the usual things including D, iron and B12 too.

Hang in there MK. I know it's frustrating and scary as hell. Well, it gets that way for me anyway. Confused
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×