Skip to main content

Reply to "Still afraid to eat"

Andrina posted:
CTB23 posted:

I’m very surprised that you’re not able to get support from your surgeon’s office,  I still get support from them.

There is nothing I can do about that now. 

About working. I am the only one who worked at that time because my husband had a car accident and didn't get compensation. I needed to pay the bills.

Yea I had a nutritionist before and she had zero clue about colitis. I have certain food intolerances and it was included in her recommended food list. I told her it was a no go for me. I did well for a while after I met with her but I quickly went back to my old habits again.

@BlueFlame During recovery did you lose weight and did you gain it back?  

I wanted to go to urgent care today but now I'm home and I'm too tired to leave the house now. Maybe tomorrow. 

It's been a long time, but I imagine I did lose some weight during recovery. I definitely struggled to gain weight at first, but I was already coming from way behind the eight ball by the time I had the first surgery.

I'm not sure if I would be a good comparison. I became ill with colitis at 16-21, had the colectomy at 21. My "normal weight" was about 110 lb, but I was so ill by the end that I dropped to 89 lb. After the first surgery, I was not a candidate for reconnection until I could reach 110 lb. I hated the temporary ostomy so much that I was determined to gain the necessary weight within the standard 3 month span between the two surgeries. I gained the weight, but not without great effort and by eating super high calories. At that time it was not about healthy was about high calories. 

After reconnection, I do not have recollection about losing weight. If I did, it was likely slight fluctuations. I mostly recall that weight gain and rebuilding strength took a really long time. I was told in a matter of months it would all be a distant memory. For me, that was not the case. It was a good year before I felt strong again. It was a slow rebuild, but I just kept at it. Now weight gain is not a problem at all!

We are all so individual and there are so many variables. I really hope you start feeling better soon. It will come. 

Copyright © 2019 The J-Pouch Group. All rights reserved.