Reply to "Steroids for Pouchitis and Cuffitis?"

JJAMember

For awhile I used antibiotics PLUS Budesonide ("designer" oral steroid) to treat pouchitis. Generally it isn't supposed to be a maintenance drug (although there are trials using budesonide as a maintenance drug for UC going on now), and I always flared when they tried to wean me off it (and they didn't want me on steroid suppositories long term either, due to concerns about thinning tissues).

Ultimately I switched to antibiotics PLUS Immuran and that combo is working well for me.

9/14/175:30 PM

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