Reply to "Steroids for Pouchitis and Cuffitis?"

Entyvio can take a while to work but I was lucky after the first infusion. This is my last hope drug but there is no way I’m removing this pouch, no no no more surgeries for me. Don’t worry about brain stuff, not one case has been found. Yeah, I sometimes get a delayed reaction. it’s very strange drug, lol, I do get premeds with solumedrol and benedryl. It has helped with some dizziness and nausea And bone pains I would get. I still got a spell this infusion of extreme tiredness but it seems to be improving. Don’t worry everyone gains some weight on Entyvio so for you that’s good! 2 years for me, I hope it continues until something else comes along. Check out Entyvio warriors of Facebook 

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