Reply to "Steroids for Pouchitis and Cuffitis?"

Thanks had the 1st treatment  on Tuesday. I felt nothing until the next day. I ACTUALLY felt normal the next day and then after that i havent felt very good. Does it take more than 1 treatment? Also was given a list of side effects and the brain damage is so scary!!!  Do you also take any steroids? I did years ago whe i had my stoma and felt fabulous. Ever since i had the jpouch surgery i have been in and out of the hospital. If this treatment doesnt work im really considering going back. My husband feels its not a good choice but he is not the patient although he had been with me every step of the way. Should i mention to Anne and Dr. Shen about the steroids?  By the way they were oral steroids and at that time my weight was up  and mow weigh 96 lbs at the age of 40 so not very happy about that! I just want to live my life pain free. Ya also now on disability can only work like 2 days a week is this truly a life???

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