sharon--so interesting that you write this as i am currently trying to figure out what my problem is. might be the hernia increased, as the stoma is 99% of the time puffed out, even after extensive irrigation. and/or the valve has slipped as the insertion can be difficult. need to super lube up the catheter and then wiggle it in, make a slight turn where i think there is a crook in the passage. this crook isn't always in the same place. now this discussion raises stenosis--oh good, another thing for me to worry about!! (you might wonder why i traveled through myanmar with this hanging over my head. totally legit question that i posed to myself and got no good answer.) interesting that while i was there, and knew help to be very far away, i had no worries.
all this to say that my local gi doc wants me to go down to nyc for the scope, although he didn't say he wouldn't scope me. i am scheduled, in nyc, for a scope on one day and procedure on the next, but it isn't until the end of april. moreover, i am uncomfortable not knowing what the procedure will be until the prior day, and subsequently can't plan for my short and long-term recovery.
am a bit off topic of the stenosis, but am wondering what your symptoms are and if any of you have insights into what my problem is. need a little camera near the pouch installed or a plexiglass window so can see in. janet