Well, remember i said how happy i was with my new K pouch? Lets take that back, i just got home from the hospital, been there since lat saturday morning! I woke up with horrible abdominal pain, cramps, throwing up, yet nothing was coming out of my pouch. Called the ambulance (was way to sick to get to emerg any other way). I found a new definition of agony, i thought for sure i was going to rupture. I knew it was a blockage, but being a saturday they had to call the on call radiologist to come in so they could attempt to clear the blockge under fluroscopy. 28 hours later, they finally cleared it, but used a french 16 cath! Way too small, but being the weekend they had no other supplies available. Was a HUGE relief to have the pressure and pain gone (i swear to god, my toxic megacolon wasn't this painful, i had tears in my eyes) but, since the cath they used open up my valve and clear the blockge was so smll, i was clear fluids only until yesterday, when they finally realized i couldn't eat. SO, i gave them my own cath (forgot it was in my bag), took me to angio, and the swapped it out so i can et real food without blocking the cath. Oh yeah, did i mention Dr Cohen, my surgeon, is on vcation until september, and no other doctor will touch his work? SO, i have to wait, until Sept 10th with a cath stuck in my stoma 24/7! Oh yeah.....the blockage location? Right in the nipple valve, you know, the valve that keeps my poop from leaking out? My last CT yesterday shows the valve seems straightened back out, but the blockge caused it to turn in on itself, and twist, aka, dr cohen may have to re-operate to correct it, oye vey! Just when i thought i was ready to get back to work and my life! But, as before, i have to thank the amazing nurses at Mount Sinai here in Toronto, they are awesome! My stoa nurse, Julie (who is also amazing) told me from day one, with a Koch Pouch, i have to become the teacher, and boy was she right! Aside from the nurses, no one knew what a K pouch was, let alone how to treat it. I literally had to instruct the doctors wht i needed to have done, and they still wouldnt listen, agh! If you are thinking about getting a K pouch, be prepared to educate eveyone about it! I never realized how rare they are. When i called medic-alert to update my file, hey said they had never heard of a K pouch, i had to send them the info on it to put in their file! Anyways......sorry for rambling, just fed up with being hospitalized, and the beat goes on!
Eric
