I had a J pouch for 30 years that had to be removed due to recurrent high grade dysplasia and a malignant polyp near the anal sphincter. I would suspect with what you posted about the condition of your pouch that it would be best to have it removed to prevent problems later on. Your surgeon should be able to advise you about that. Have you inquired about having a new J pouch constructed?
In my case, the option of going to an end ileostomy was suggested in a second opinion consultation, but I did not want that procedure with its associated issues. Fortunately, I researched my options and elected to get a BCIR (similar to a K pouch) that does not require having an external bag. During the 30 years I had the J pouch, numerous dense adhesions had developed that lengthened my surgery time by 3 hours. The surgeon removed my J pouch and sewed up my bottom. Everything went well and I have had excellent results with my procedure.
I have become very active in the continent ileostomy community and am a columnist in UOAA’s magazine, “The Phoenix”. One of my articles is entitled, “Researching My Options” which can be viewed at:
https://j7d.873.myftpupload.co...chingMyOptions-1.pdf. . This article is also available on the website of the Quality Life Association (www.qla-ostomy.org). This website contains additional information about the BCIR procedure as well as a list of surgeons who perform continent ileostomies. I would be pleased to provide more information if you are interested. Just send me a PM. Bill