I had my takedown almost 1 year ago. Diagnosed with UC in 2016, total colectomy with rectum removed. I now have my J-Pouch & have had severe pains since the day of my takedown. About 4 month ago I learned how to pass gas by laying on my stomach which helped relieve some of the rumbling pains I was having. Here I am almost a year later & I am passing gas over 200 times a day (yes, seriously), long bouts of wind repeated about 20 times every few hours. I am finding myself spending half of my day on all fours trying to let out gas, this is no way to live.
My diet:
White Rice & Avacado with soy sauce, salt & pepper
Potatoes (French Fries no skins, I found a place I frequent that special preps them for me) Definitely keep thing pretty thick.
Coffee (small amount of cold brew, very low acidity)
Matcha Green Tea with soymilk (warmed)
Gluten free rice bread, usually with peanut butter
Boxed Butternut Squash soup (has garlic powder in it)
Occasional Dark Chocolate
Water
Lemon Water
Ginger/Tumeric powder added to water sometimes
I pretty much live off of the above foods, I cannot tolerate fruits, vegetables and about 90% of other foods.
VegaOne Protein powder shakes, with banana, coconut oil, peanut butter, sometimes soy protein powder, & almond milk ( I cut this shake out of my diet for a week & still having problems, I thought maybe the powder or bananas were causing gas).
I have been vegan for about 6 weeks, I do not do well with meat. After becoming frustrated of eating such a limited diet I had a chicken soup the other day which was soothing, & had some cooked salmon earlier today. The salmon was refreshing & easy to digest however it gives me liquid stools.
Before anyone points out foods that are causing gas, let me state that I have been dairy free for months, I hardly consume any sugar, & I don't eat junk food. I have tried the elimination diet & have cut most of the above foods out for several days with no/little change. My only concern with my current diet is the starch from the rice & potatoes. Possibly soymilk, dark chocolate, or bananas (fructose)? Either way no food should be causing this much gas.
Medications:
Canasa Suppositories
Hydrocortisone Suppositories
Gas-X doesnt help it only makes me pass more gas. Beano doesn't help it contains Mannitol (Sugar Alcohol) which actually causes gas for me. I don't chew gum, & I am trying to eat slower. I find some relief with probiotics, sometimes they cause me to have more gas, sometimes they calm things down.
Im on a course of rifaximin antibiotics being treated for what my doctor thinks is SIBO, I have undergone this antibiotic treatment several times with little to no results.
I have tried the low FODMAP diet & am still working on getting it right
Any & all advice is appreciated, again I am passing so much gas that is is unbearable & I can barely leave my house. No one believes me besides my Mother & my very supportive partner. No jokes or comments, its just ignored however they hear it and deal with it well & it is truly embarrassing for me. When I say how much gas I am passing, I know some of you may have experienced this however others don't believe me or understand. I need it gone now! Or at-least for it to sow down. I have passed gas over 200 times today, I have to sit in a certain position to pass gas never standing or laying on my back. Always on all fours or laying on my stomach. This tremendous amount of gas & pain is unbearable & I will try nearly anything to stop it. Please help.