I am so sorry Jilly,
This is not acceptable..you cannot have a normal life this way or even get a decent night's sleep...camp out on your doctor's doorstep until you get a response. There are solutions possible...come post on the K pouch section of this forum to talk to others who have lived this with their J pouch and have swithched over (I am not selling them but do believe that there are always solutions with failed j pouches and that is one)
Sharon