@vanessavy posted:I know SIBO symptoms are similar to pouchitis. My idiot doctor's nurse kept swearing I had pouchitis and had me on 3 antibiotics for a year. I even had surgeons scope me locally who said I had no sign of pouchtis. Yet nobody had an answer so said maybe the "lighting was off in the pouch photos", what a crock of crap.
I didn't know any better and with my symptoms I just went along with it. I then went to a new GI who was pretty good and she said she believed I must have c.diff or SIBO. She was running out of ideas since antibiotics were not doing much after awhile. I saw Shen at CC and he diagnosed me with SIBO based on symptoms and not seeing anything wrong with my pouch.
I then saw him for a follow up 4 months later and was diagnosed with c.diff due to all the crap antibiotics I was on for "pouchitis" that I never had.
I know people post on my BCIR message board that with diet change and upping their fat content with different olive oil and oregano oil that after a year they were off antibiotics. I was so hesitant when Shen told me to get off sugar asap or I would be on antibiotics for life since sugar makes my pouch super runny and I need that. I also LOVE to eat cookies, cake and ice cream :-)
But after almost booking surgery to take this pouch out and going on and off a primal diet with no real commitment for 3 years I buckled down and threw out all my antibiotics and got my diet under control.
I use coconut milk instead of almond milk because I personally notice almond causes me more gas and gurgling guts.
Certain things I pay a lot of attention to since cleaning up my diet if I introduce something and my pouch is turning over itself with super slick stool that comes out and bad SIBO gurgles, I eliminate it. I love LOVE love oatmeal but I get serious gut gurgles if I eat it. So I avoid oats.
I never had UC so I never had issues prior to getting rectal cancer and having my colon removed. This is all new to me. But after doing research about SIBO and talking to Shen I believe I had SIBO far before getting a pouch. I ate really crappy most of my teen life.
The thing about diet change for SIBO is it can take a full year for it to be really under control, so I think some people get fed up after awhile and don't stick to it. I saw a big difference after a month of a clean diet. In the end diet is always the answer IMO.
I don't eat anything too processed. I say that because canned coconut milk and tomato paste I get at whole foods is still processed in some way. What I do not eat is fast food, boxed or frozen dishes. I buy local at an organic butcher and try to get my produce at whole foods or another local market.
If you have a diary I would say shoot me a PM with a week of what you eat and I can comment if any of it messes me up personally. I can't say that we are the same but it is trial and error with this pouch.
FYI I get irritated by canned chicken stock even because of the cane juice that is in there so I now make my own.
A SIBO test can help and an antibotic like Tindamax that finally got mine under control might help you. I would rule out c.diff to start since that was my main issue. I had it for about a year and suffered greatly.
Almost 10 years late haha, but I was wondering if you had any advice for treating sibo? I eat meat, sweet potatoes and white rice. I take AG and liver pills. Thanks!