Hi Fellow Experts!
I am a 50 year old “MILF” with a great sense of humor and a pain in the butt to match! I have had a jpouch for 24 years and need your opinion. Unfortunately, I had a 1 step jpouch surgery after severe UC and NEVER had an illeostomy. I have had chronic pouchitis (Cipro & Flagyl) for 22 years. Urgency, dehydration, ulcerations, loose stools. Accute every 6 months and never fully well. I have spent most of the last 25 years looking for a bathroom. Lots of gas. I want to be more active (tennis, hiking, travel to see my sons in college). But, I’m always exhausted. I have a lot of allergies and sensitivities and get worn out easily. If possible, I’ll see about a loop illeostomy to try it out. I want to know if you felt well when you had your illeostomy. Did you still have nausea, exhaustion, loose stools long after surgery. I want to have a better quality of life, but I don’t want to ruin what is left of my looks (and feeling free of attachments) if I will still be tired and emptying my bag constantly. On an average day I go about 12-15 times. If I live to be 80 years old, that is another 164,250 trips to the toilet! I’m pooped out. Thoughts?
Valerie