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Reply to "Sexual Function for Males who have had Jpouch Surgery"

It has been a year after my surgery. I was never told of any possible side affects by any of the medical staff I came in contact with. 

About 5 or 6 months after I my j pouch surgery, I started to have painful erections that would even sometimes wake me up. This has dissipated but there has been little information I’ve been able to find in either articles or by asking my doctor(s). I’ve seen two urologists so far and made a call to the surgeon about this, who did not respond...to not completely sweep him under the bus, I admit to not following up on it.

Last month I was told that I had developed a case of Peyrones’ Disease. The prescription has been taking large doses of vitamin e for the misshapen penis and viagra for the ED. Electively, I also take ginseng, ginko biloba gotu kola, maca and Acetyl L-Carnitine. I also work out and swim five times a week, biking to and from those facilities. Obviously, I’m trying everything I can to stop all of this and have seen some result in the misshapenness but little more in the sexual function, mostly due to anxiety of losing it all. 

I guess my main questions are:

1) was my penis somehow damaged in the operation or did it somehow occur as something related in the recovery
2) what to do to recover?

In short, it has caused a lot of anxiety for me and a level of unpredictability with sex that I find even more anxiety producing, any suggestions on how to proceed with this are appreciated.

 apologies for the length of this....I’m a little freaked out

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