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Reply to "Scared to eat food after obstruction :("

Isolation is a very hard and depressing thing...I know...I am one of the 'oldies' here on the site...I have a k pouch (same pouch, different exit...we have an abdominal pouch with a stoma that you empty using a catheter) that was done in '79...long before most people had ever heard of a pouch (human experimentation in Canada...I was part of the test group)...no internet, no forums, no group anything...just isolated and alone...then I left the country and moved to a place that didn't even have surgeons to help me...(fine, I fled)...and lived 'the secret' for over 20yrs...no follow-up, no treatments, no medical advice...Even a surgeon who operated me without knowing what a k pouch was or how it worked and stuck a bag on it post op (thank goodness I woke up, freaked out and then got the explanation and had them intubate me!)

So, I understand Isolation and fear and loneliness...

Keeping food diaries helps, seeing what works and what doesn't and then writing things down...But you need to include what you eat, what you eat it with (certain mixes make things worse), what you do or don't drink at the time (certain liquids help to digest foods: grape juice or wine  ,  what meds you take with your foods etc...do not forget that certain thing can slow or stop digestion too like stress, physical activity (playing sports, sex...), so keep your diary, chart things and see what's what for you (we are all different...so of us can eat just about anything and never have a blink of a problem, others suffer for every single bite)...it will make you feel a little bit more in control...and do not forget to write down at what time you ate and how it affected your intake and your output...certain foods can give more gas or heartburn while others just slide on through...

I hope that this helps you and makes you feel a little less alone.

Sharon

 

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