Reply to "RV Fistula output?"

Hey lixxie, it sounds like your RVF is quite small. Or in the process of healing? Did you have an MRI done? That's how mine was finally found.

Most of the time, my drainage is what I'd consider light. However, if I'm "holding it (my poo)" for too long, more comes out of the fistula hole. There is air from time to time, nothing embarassing. The outside hole is just outside the vag. opening. I wear a panty liner 24/7, and I also stick a makeup remover pad (cotton round) on it if I'm having a heavier day. I take antibiotics for both the fistula and for pouchitis.

I've had my jpouch 19 years, this appeared about 1.5 years ago. In June I had a seton put in: this was to prevent branching, and to help it heal. I like CJB's explanation, comparing it to an ear piercing - wish I could thread a string soaked in rubbing alcohol through the fistula like I remember doing with my ears to help them heal! My doc (at CC) told me this type of fistula will NOT heal. I think that's because mine's got a large angle to it.

I go back to the surgeon next June to see how it's going. She thought the seton would be in for 3-4 more years. She offered up a pouch redo, or a pouch removal, but even then said there's no guarantee the seton would go away. She didn't sound confident that any other type of fistula surgery would work on this particular one.

Really, this will sound selfish, but the only problem I have is that marital relations are not possible, at least not at this time.

Good luck with yours - fingers crossed that it healed on its own!
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