Hi Gail..I'm sorry to hear of your need to remove your jpouch. I too am in the same situation. Our stories match almost to a T ! I've been in pain past 12 yrs or so. I got my j pouch back in 1989...had u.c. for 10 yrs & back then I wasnt responding to the meds they had available. Long story..major complications but a great surgeon Dr Lavery at ccf in Ohio saved my life & j pouch. I was good for about 20 yrs. Then c diff, pouchitis, chronic pouch ulcers, etc,etc. I've been on numerous meds & 2 biologics. Finally..schedule for j pouch excision jan 30th. I won't lie...im petrified of this high risk surgery too many belly surgeries with tons of adhesions but I just don't think I can continue on..I feel like I would crash! I'm 62 yrs old have 2 very active beautiful grandkids that miss having fun with their Nana & I too miss it!! Praying whatever your decision is..God keeps you in His hands & you move forward to a healthy & beautiful life. Remember..its quality of life that you need. Wish you the best.
Patti