Hi Benita. I am so sorry to hear about your pain. I know that too well. I didn’t plan to take down the JPouch but the doctor’s perforation left me no other choice. I hope you can find a doctor/surgeon to discuss options. Sometimes, we as patients need to keep pushing for answers and consulting with people. Have you read the Empowered patient? It was helpful to me years ago.
Sending positive thoughts you will find something to ease your pain.