Hi there, I have a question as I'm in a somewhat similar situation to you. I have had numerous stricture dilatations, with the most recent one (11 months ago) involving bowel perforation, repair and creation of a loop ileostomy. I am struggling a lot with the ileostomy and also not optimistic about reconnecting the pouch (due to strictures, pouchitis, fistula and incontinence issues). Progress is currently very slow on the NHS in England, so I'm concerned about long term effects of a disconnected pouch. And considering pros and cons of going straight to a permanent ileostomy.
Can I ask, how did you become aware your J-pouch was infected and is this the reason you've stayed with the ileostomy for 5 yrs?