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Reply to "Remove JPouch"

Hello.

Sorry to hear about your situation. It is very complicated. I went to a specialist to try to address the chronic pouchitis I had since the JPouch was created. During a balloon dilation the perforation occurred. The emergency surgeon said the JPouch could be reconnected but other surgeons said that it would be difficult to do. My ileostomy is permanent. I also have lots of issues with it too, prolapse, retraction, allergy to all pouch systems. However, for the first time in many years I have been able to eat fruits and vegetables, so I resolved to keeping it.

With Crohn’s and strictures above the pouch, it is likely that reconnecting the JPouch could continue to cause pouchitis. I felt so sick from it before, I don’t want to go back to that.

Regarding the unused pouch, I was told that if it doesn’t cause problems they just leave it there. What issues are you having with your ostomy and JPouch? My symptoms were increased increased fatigue, feeling mild illness, mucus, urgency, pain in pouch and diffuse abdominal pain. Initial treatment antibiotics and then biologics.

Take care. Z

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