Skip to main content

Reply to "removal or disconnect?"

I had mine disconnected a little over a year ago. I have had the pouch for over 20 years, and it was so scarred in and such, that my surgeon did not want to remove it unless absolutely necessary, since it is such a horrible and difficult surgery to remove everything. I did have one small episode of diversion pouchitis, that cleared right up with antibiotics. The biggest downfall for me has been in the last 6 months, tension from the pouch has caused my stoma to become flush now. I have to change my flange every two days because of it. I wish I could get 3 or 4, but its not going to happen for me with a flush stoma. But I can live with 2 days. Every day changes become a little too much. Recovery from the disconnect surgery was faster than step one or two of the j pouch surgery. I could have came home the second day, but stayed one more day just to make sure everything was ok. I plan to stay with the disconnected pouch, unless something changes requiring me to rethink things. The surgeon does want to scope the pouch every 2 years to check for displasia and such. 

Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×