I read somewhere that removing j-pouches was as traumatic as the removal of our colons and rectums. I don't remember why. I don't remember which member but there is a lady from Minneapolis that went to a permanent stoma and left her j-pouch in.
If I need surgery like this I was planning on leaving mine in. I didn't realize that there would still be mucus coming out of it though. I don't want anymore adhesions in my abdomen. 5 surgeries worth have messed me up enough. I don't think I could handle another operation like the the first j-pouch one again.
It's wonderful you have a surgeon with so much experience! This is a major decision for you and I think you should ask him as many questions as possible so you know exactly what you are facing.