My initial thoughts are to see if there are other non-surgical treatments that can restore a satisfactory quality of life for you. Perhaps a second opinion with a doctor who specializes in treatment of problem J pouches would be appropriate. The Cleveland Clinic would be a possibility. Six years ago, medical complications made removal of my J pouch necessary, and I strongly did not want a conventional ileostomy with its associated issues. I opted to get a BCIR (similar to a K pouch) that does not require having an external bag and is emptied 3-5 times a day with a small plastic catheter. Although you have Crohns, a small group of people with it can get a K pouch or BCIR. The location and extent of your disease would determine if you would be eligible to get one.