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Reply to "Remicade Failed For Pouchitis/Crohn's - What's Next?"

Hi CT Barrister. Sorry to hear of the troubles.

The new thinking about what had been called Crohn's in the pouch/pouchitis  was discussed among leading experts in the first Columbia webinar in Sept., which is on-line and link posted a few places here. Have you watched it?  Discussion was towards the end I think. They  suggested that study of this Crohn's-like disease of the pouch may help identify the causes of IBD generally. As your doctor noted, they are not calling it Crohn's, and now the surgeons are specifically including risk of recurrence of IBD like disease of the pouch  in their informed consent for UC patients (who never had any disease in the small bowel.) I think it was Dr. Hull  who said removal of the colon and creation of J pouch doesn't mean UC "cured," because us lucky ones are probably pre-disposed and as the mucosa of the pouch changes, we'll - you know.

I hope things ease up for you.

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