Reply to "Remicade"

Hi - I've had UC for 30 years and have been on Remicade for 6 years.  Only 1 time I felt a little itchy, and when I told the nurse, she stopped the infusion and replaced the Remicade with a bag of Benedryl.  The solution was that for the next 2 times I had a bag of steroids before the Remicade, but the steroids made me crazy, so I opt out of them.  I feel Remicade saved my life, but I do have a few things to say.

1.  cost - it is a battle to have my insurance approve this.  Remicade is costly, and I've found that by getting the insurance to pre approve a year's worth (6/7 treatments) is much easier than getting a bill from the infusion place when my insurance has decided I don't really need it.

2.  About a year after starting Remicade, I developed enteropathic arthritis.  Basically - I was told that the swelling from the UC "has to go somewhere!" so it goes to my joints.  It's bothersome about week 6 of my 8 week cycle.  I can live with it, and once I get the infusion I feel terrific for 6-7 weeks.  Remicade completely stopped the UC (at least for me) but left me with arthritis symptoms.  Pick my poison, I guess.

3.  It really does knock out your immune system.  I catch everything.

 

I would rather be on Remicade and deal with these issues than be in the hospital with a flare that won't stop.  I think it has saved my life.

Now, I have a question...what's a take down?

 

 

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