Reply to "Remicade"

I really appreciate the responses from those of you who took the time on this thread.  I am scheduled for my first infusion tomorrow morning.  I am a little (or maybe a lot) apprehensive about it.  Back in the mid 90s, prior to my surgery, I was on Imuran for about a year.  Then 2-2.5 years ago I tried Humira.  I was told that the Humira wasn't getting into my bloodstream.  I have no doubt that this IV infusion of Remicade will, so I am just anxious about all the potential issues that could arise.  

I had my total colectomy in July of 2000.  So, for the past 19 years I have been living with the symptoms of not having a large colon, having some inflammation in the anus area and sometimes on the pouch.  I have also been diagnosed with Crohn's Disease because they have found inflammation in my small intestine too.  I get by day-to-day not too bad.  Some days are rougher than others.  I think I could hold a full-time job, depending on what it entails.  I am in very good shape for my age (probably in the top percentile) and I look after myself well.  However, I have been taking 360mg of codeine daily to keep my symptoms in check for over 18 years.

I have thought a lot of the fact that "maybe I shouldn't fix what ain't broke." Or at least it functions well enough.  I have mentioned that to some GI specialists.  The response I got was that it's not a good idea to carry on with inflammation in my digestive tract.  That could lead to more severe problems.  Hence, I tried Humira -- but it didn't work.  The reason I never started Remicade sooner is because my family re-located and thought it would be best to wait until we got settled.  Also,  medicare in Canada is a very slow process. That coupled with the fact that I wasn't in a hurry to try another medication is the reason for the 2-year gap since completing my Humira trial.  

I am still apprehensive and not sure if it's the right thing to do or not.  I suppose it's worth a try.  I am not gravely ill by any means.  I just hope it's a smart move.

 

 

 

 

 

 

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